Asperger Syndrome and Love

    

On the morning fo the football game I ate breakfast with John, as well as another UCM student, also named John. Then I found another pebble out in the Ellis courtyard. Then Tyler arrived, along with his mom, and his grandfather with Alzheimer’s, who looked very confused. We went to the THRIVE reunion barbecue where I saw Hillary, Mr. B, Mrs. Fahrmeier, Dr. Mayfield, and Julie. At the reception, Tyler struggled to help his grandfather into his coat, and I said, “Tyler do you want me to help with that?” I helped him grandfather get his arm through his sleeve and then something incredible happened: he smiled and held out his hand for me to shake, which I did. I suddenly realized what it must be like for my brother Jamie, working and interning at a senior center for people with Alzheimer’s and Dementia. Then Hillary, Tyler, and I went to watch the football game up in the presidential box where we had been invited for the reunion. I also read a story about a college couple on, the two of them with Asperger syndrome, who lived together in an apartment at the University of Massachusetts and found a way to compensate for their condition to be together. It began when Kirsten Lindsmith met a guy named Jack Robison. Kirsten had been misdiagnosed with ADHD and never had heard of autism. Her boyfriend at the time was a high school socialite who had a way of always correcting her social behaviors, such as speaking in monotone, scooping up the food she dropped on the floor at restaurants, and speaking for long minutes to her boyfriend’s friends about her interest in animal physiology. Kirsten went through years of social rejection, making her so eager to please, and thus prone to manipulation by others. Then at UMass Kirsten met Jack at a café as he, a man with an intense interest in chemistry, did some testing of explosives in the woods, which he filmed for YouTube, upsetting people from the Bureau of Alcohol, Tobacco, and Firearms, for Jack didn’t realize that setting off explosives in the woods may not necessarily be seen by the ATF as ambitious chemistry experiments.

 

Jack was cleared of all charges and recruited by the UMass Chemistry director, who was impressed by his home-built chemistry lab. Jack moreover was the son of John Elder Robison, the author of the book, Don’t Look Me in the Eye, about being diagnosed with Asperger syndrome at the age of thirty-nine. His father regularly wondered could someone with Asperger syndrome find love? I knew I had gotten the support in my childhood that allowed me to be very social and good at reading non-verbal cues and social perceptions and have the same quality of life as others, but that didn’t mean I never feared how others would perceive my own differences.

Kirsten met Jack between classes and he felt a strong sense of love for her but unable to tell from her non-verbal expressions what she felt, and one day simply e-mailed her telling her his feelings flat out. Kirsten told her boyfriend about it and that she felt she had found her soul mate. Jack and Kirsten grew closer and lived together in an apartment at UMass, but faced some difficulties, such as Jack’s lack of understanding of human touch in relationship that nearly brought Kirsten to a nervous meltdown. Yet through seeing a relationship counselor, they devised a plan for them to get a housecat, which they could pet and use that as a way to demonstrate how she wanted to be caressed. Afterwards their relationship continued to flourish and they ended up contributing to Wrong Planet, so it seemed for Jack’s father, the answer to his question was yes, people with Asperger syndrome can indeed find love. I finished reading the story feeling very deeply and personally affected by it. Love, I’ve heard over and over, comes when you least expect it.  I imagined over the summer before I dated Emily and after that, that I would meet at the UCM Autism Spectrum Support Group, yet my Granddad would say, “Maybe you will meet someone in one of your classes.” I remembered last year though how Teresa gave me a stone on our last Person-Centered Planning meeting that said “Risk,” asking me to love someone who will love me the way I deserved to be loved, which she said I did deserve. 

After I got back I saw I was getting a call which turned out to be from my mom and I answered it. She said, (she and Dave being in Colorado) that our pet sitter Nick went into the sunroom and found my fourteen year old cat, Polly lying on the floor, dead. I froze and after I hung up, Tyler’s mom put her arm around me. I suddenly felt strange; Polly had been with me for fourteen years of my life. 
                Tyler and his mom left and I called my friend Erin, who gave me her condolences for Polly. I talked to my dad who told me his and Sherry’s old cat Buddy Girl, also died recently. Then I worked on my snack wrapper collage of Maja Toudal, though still with a residual shock over Polly. I still hadn’t eaten, and it was fifteen minutes until my exercise time, the closest restaurant being Chic Filet, which I didn’t want to eat at due to its owner’s stance on gay marriage, while there was also Crazy Dog’s which would make me late for my exercise, which I needed in light of Polly’s death. In the end, I went down to the food court shop and bought some beef jerky for dinner, so I would at least have some energy for the treadmill. After I got back I talked to Jamie, who had heard about Polly and gave me his condolences. He also said I was right about how it felt when I helped Tyler’s grandfather. I also made another mala from straws and finished a bicycle streamer made from snack wrappers. I decided to save my meditation journal entry for today for the next day and make that day’s and today’s entry one entry dedicated to Polly. Yet I felt a strange sense of joy realizing what she was to me. 

On Sunday I saw a trailor for The Hobbit: The Desolation of Smaug before I went to bed. After I got up and did my meditation, I worked on my travel plans to Kenya. I also talked to Tyler some more.  I learned about the ruins of Thimlich Ohinga in my Lonely Planet Kenya book, which were said to bear great resemblance to Great Zimbabwe, and felt excited for my Modern Sub-Saharan Africa class. Later Kyley came into my room and said she really liked the Autistic Pride pencil cups made from Pringles cans. After that I reorganized some of my recyclables and worked on some earrings made from bread bag tops. Then I went down to the library, got on a computer and posted on Facebook a eulogy for Polly:

R.I.P Polly Edwards. I knew you since you were a kitten when I got you for my tenth birthday. You were there for all of middle school, high school, learning to drive, two colleges, starting two student group, four relationships, two houses I lived in, and much more. I will remember you always.

Later I found Hillary and Alex Habib put their condolences by the remark and I thanked them for it. Afterwards I read most of the reading for my World Masterpieces class. I got back to my dorm and did my laundry. Later I worked on my snack wrapper collage of Maja Toudal. Of, course I also made the day’s meditation journal, about today and the day before that, something I dedicated to Polly. 

I later ate dinner with Logan and another THRIVE student, the former, especially, seeming happy to see me. After I got back from the Rec Center I made another mala from straws and talked to Tyler while I worked on my yarn painting of Hank Hill. 

 

In my next Drawing I class I learned more about accenting the lines on charcoal drawings. I later got some more super glue at the Union bookstore, getting another dime for my collection from my change. I found out later that my World Masterpieces so after sorting some recycling I got back to my dorm and worked on my foil sculptures of the Buddha and Thomas Jefferson while I talked to Tyler. Then I got finished with my Algebra homework for the day. Afterwards I worked some more on Hank Hill and Maja Toudal. 

The next day I made two more roses from straws and worked on my handbag made from snack wrappers. After my North American Indian class I went to the UCM Autism Spectrum Support Group meeting, which Tom and Dr. Mayfield came too and we decided on a Bowling Night the next week. I talked to Tyler some more while making some “plarn” (yarn made from loops cut out from plastic bags). After running on the treadmill I made another mala from straws. I also showed my mom my snack wrapper collage and she loved it. 

I sat with some THRIVE students at lunch the next day. Then I read most of the reading for my World Masterpieces class. After that I got one hundred percent on my Algebra quiz. I then e-mailed all the UCM Autism Spectrum Support Group members about the bowling night next week and the movie night. Later I talked to Tyler for a bit. Then I found a way to repurpose some of the plastic bottle caps in my pile by turning blue ones into Earth Day magnets, white ones into snowman magnets, and brown ones into Thanksgiving turkey magnets. 

The next day in my Algebra class I got 82.65% on my Algebra test and half way through the study guide. Then I posted on my Aunt Laura’s Facebook page thanking her, my uncle, and cousins for the birthday presents. Later at my North American Indian class I found out I got twenty-seven out of thirty points on the oral presentation and eighteen out of twenty points on the written part. I also started realizing how the more we learn about different cultures, the more we see how people can adapt to all different kinds of environments, like the harsh deserts of northern Kenya, or the Danakil Desert of Ethiopia and Eritrea. On my way back to the dorm, I got a picture of the Rec Center wall behind a tree and it was glowing yellow in the setting sun and I thought I’d submit it to UCM Photos of the Week contest. Later I made three more stamps from plastic bottle caps and Styrofoam, and I decided that instead of making signs with my bottle cap collection, I would make a wall fish, which would take up less space. Later I went to Max’s, the UCM drug-sniffing dog, retirement party. I also talked to Tyler while I made another mala from straws. I also told my Granddad about my photo and my idea to submit it to UCM Photos of the Week and he thought that was a great idea.

The next day at breakfast I sat with Oscar and Tom, inviting Oscar to join in the UCM Autism Spectrum Support Group movie night and he accepted. I also thought about the great works of art indigenous peoples have done and realized it shows their lives are not all about struggling for survival. I went to the movie, though no one ended up coming, though Oscar did text me saying he had a lot of studying to do and couldn’t come. I did notice how the planet the movie took place on almost looked like Tibet, and thought if the Chinese wanted to wipe out the natives through intermarriages, forced sterilizations, and assimilation, they’d need to find someone else to do all the menial work. I didn’t end up staying as I really had to use the bathroom and no one was there. Afterwards I would have gone to the Print Club but I was far too tired and needed a break. I talked to my granddad when I got back and he said that what the group may need is better advertising. Later I worked on my bag woven from bags and some plarn while I ran on the treadmill. I got back and talked to my dad who telling him about the movie night and he thought that people might not be showing up because there’s no one there for them to meet and we could start by getting a core group of THRIVE students to come. I liked this idea and decided to try and work it out. Afterwards I worked on my plastic bottle cap Green Man. 

The next morning I worked on my travel plans to Tanzania after breakfast. Then I sorted some recycling, during which time I found another bottle cap for my collection. I took out my own recycling and as I did I found my prescription from Dr. Mays. I found another pebble, and then I worked on my streamers and collages made from snack wrappers. I went to Those Were the Days and got some more embroidery floss for my malas and yarn paintings. Later I went to Walgreen’s and got some beef jerky, Hershey’s minibars, and Altoids. On my way I got a picture of a full moon over Ellis behind some clouds in a pitch black sky. Then I got back and talked to my granddad who suggested I tell the THRIVE students about the group in study hall or one of their classes. I read the reading for my World Masterpieces class while I was on the treadmill Notes From the Underground, which I thought was really good.  Then I made another mala from straws.

The next day I tried to submit my first photo but I couldn’t figure out this address I needed to type in to send it. Never-the-less, I still decided to take photos like that. I e-mailed Mr. B asking if I could come speak to one of his classes about the group. Then I ordered myself a sheet music book called The Lord of the Rings Trilogy Flute Solos and a Lonely Planet book on Mozambique. Then  I went to Hasting’s and got the Winter 2013 issue of Tricycle magazine, National Geographic’s Best City Weekends: Unforgettable Itineraries, Local Neighborhoods, 30 Insider Tips, the November/December 2013 issue of Native magazine, the Holiday 2013 issue of Woodcarving Illustrated, and the Winter 2013 issue of Do It Yourself magazine. I also recycled and sorted some bottles and cans I found along the way and when I got back. Then I made a pinwheel from a Kool-Aid pack. I also made twenty more flowers from straws. I read more of Notes From the Underground while I ran on the treadmill. I got back and did my laundry. Then I talked to Tyler for quite a while I made another mandala from straws. I also sent my mom the prescription numbers for my medications so she could refill them at home.

The next day I got three out of five questions right on a quiz for my World Masterpieces class, though I also got a bonus question right. Then I tried to get done my Algebra homework but again found myself to spaced out to concentrate that it took me a while to do several problems I normally knew how to do. I took a break during which I got the idea that while I didn’t have sixty milligrams of Vyvanse I was supposed to take I did have two thirty milligram pills, which I could take two of but decided to check with my dad who would know whether that would work. It turned out I wouldn’t be able to finish all the homework that night either however as I felt so exhausted from hearing about Tyler’s endless problems. I did talk to my dad though who said that two thirty milligram pills would be a good idea, though he also mentioned it didn’t work that way with every medication, for example, not all pills would have half the effect if you cut them in half. After that I made another bottle cap necklace for myself with a calligraphic piece by Thich Nhat Hanh printed on computer paper saying, “Peace is Every Step.” I decided I’d give my original necklace to Tyler, who might lose it, but giving it to him would still mean a lot to him. I also made seven more flowers from straws.

The next day I got a lot of the way done with yesterday’s assignment for my Algebra class during class time. Then I got back and worked on my second handbag made from snack wrappers, deciding to add one wrapper’s worth of links to it a day. Then after lunch I worked some more on my Algebra assignment before I had to go to my North American Indian class. After that I went to the Bowling Night where Tom came and we both excelled at the game, perhaps due to taking a Beginning Bowling class through the THRIVE program. Then I finished my Algebra homework and got a 95.12%. I got back and worked on my Thomas Jefferson bust while I talked to Tyler some more. After I finished running on the treadmill, I got the idea that maybe I would like, after I finished school and was waiting for my film career to take off, to work in helping with archaeological digs and hands-on cultural projects with kids with Down syndrome. I also got the idea to make an Inuit sorcerer figure from some of my plastic bottle caps. I talked to my dad who really liked the archaeological digging idea. I started working on my sorcerer figure and then took out my trash.

The next day in my Drawing I class I learned more about using different values to create contrast in an object. Then while I was at lunch Mr. B saw me and came over to my table telling me that, while he did not normally use class time for groups to talk about themselves, I could tell of my group to the THRIVE student organization and contact Ryan, who is there president. Later I went to my World Masterpieces class and got three out of five on the quiz. I got back and worked some more on my foil Thomas Jefferson bust. Later I made another toilet paper roll diorama of Erdene Zuu monastery in Mongolia. I also talked to my grandmom, who said she head from my mom that Sean Swindler would be coming down to UCM to check out the THRIVE program and help the UCM Autism Spectrum Support Group get more members. Then I worked on my Inuit sorcerer figure and then saw Abduction with some people from my hall. Then I worked on my bag woven from bags and my second handbag made from snack wrappers. I also talked to Tyler while I made another trellis square from bottle rings and twist-ties, and decided it was time to say goodbye when I finished. 

The net morning before I went to bed, I read in National Geographic about a Nigerian terrorist group called Boko Haram, who many Nigerians were so afraid of that they didn’t even say their name. I thought that sounded kind of like Lord Voldemort in Harry Potter, and then I realized that’s how I used to react whenever someone said the words “Asperger syndrome” or “autism.” After I woke up, did my meditation, and had breakfast, I went to my Algebra class where I passed the quiz. Then I did my daily work on my handbag made from snack wrappers. During my North American class, we watched a video on the controversy surrounding Native American mascots, which provoked such strong reactions from the people in class. As I saw it, a small part of me thought “that is the nature of prejudice and when I find love it will need to be with someone on the spectrum, who can understand the autistic struggle,” temporarily took hold of me like it never had before. As I thought this, Laci, who was sitting next to me, looked as though she’d just been told she was laid off a job. Suddenly, I thought perhaps I was wrong to think that, and that maybe that thinking is what has held back people with autism for so long. Really I was just divided in two from years of prejudice and discrimination, the former which still has not stopped for me.

I worked on some streamers, scrapbook covers, and collages made from snack wrappers when I got back. I also visited the UCM art gallery where I got started on my gallery trip paper for my Drawing I class, critiquing an intaglio print. Later I ate dinner with Josh, Mary, Oscar, and Levi, and two other THRIVE students. Then I took out my trash and made three more stamps from plastic bottle caps and Styrofoam and an earth magnet to hang on my fridge. After running on the treadmill I went to the Turkey Bowl with Hillary, Phillip, Mardy, and Ryan. I thought how it is often believed that people with autism don’t want relationships, or don’t care for the physical aspects of it, but I think it’s really that they don’t understand the social aspect to it. But I felt quite bad about my own ablest thoughts in my North American Indian class, especially seeing many of the people I had seen that day did not deserve to be tarred that way, which was no fairer than being denied access to society for their disability. I thought I did need to be more open in love, very uncertain of how it would turn out.