On the day after we got back from Colorado, I pulled some
weeds and the mowed the lawn. Then I
went to Starbuck’s and read (reread) where I left off in Water Touching Stone. I also
e-mailed Elizabeth to ask her if she could give me a ride to the Camp Encourage
panel in Lawrence. Dave’s brother-in-law
Kent came to see us who he was staying with while in town for his Skills USA,
and we all had dinner. I was also asked over
Facebook by Elise Johnson Chaplain from Horizon to answer some questions on
Buddhism for a class she’s teaching for her MSW, which was due on Friday, which
I gladly agreed to do. I also got a call
from Jack inviting me to see Shakespeare in the Park on Saturday, which I
agreed to do. In a week we would also be
going to New Hampshire to see my mom’s family, and I would get up on Friday to
catch a plane at 4:50.
The
next day I got an e-mail from Elizabeth saying she was rather swamped but
telling me that she could come pick me up on Wednesday morning and take me to
camp to volunteer with her at camp that day, then to stay at an apartment of a
friend of hers, where we would sleep on couches, go to camp and volunteer the
next morning before the panel, and afterwards go to her Bible study in Lawrence
before going back to the apartment, and going home the next morning. I of course agreed and e-mailed Mrs. Johnson
to tell her I would need the questions by today or tomorrow to do them in
time. The next morning I pulled several
acorn trees and later I went to Starbuck’s.
Later I answered the questions on Buddhism for Mrs. Chaplain and e-mailed them to her. I also talked to Tyler.
The
next morning Elizabeth picked me up and told me one of her favorite shows Switched at Birth took place in Mission
Hills. I went with Elizabeth to pick up
her friend Angela, who I met and found to be very nice, as Elizabeth said. We went to Camp Encourage, where I helped a
few kids from one group of campers make stress balls, and then another group with
making slime. Then I switched to helping
the next group of kids make stress balls and then slime. During that time I got to meet Kelly, who was
in charge of the camp as well as a young blonde counselor Cassidy. After the last group of kids had left,
Elizabeth, Angela, and I cleaned up the mess.
Afterwards we all ate dinner together and then we went to the LLC Room
where we sat in a circle, accompanied by two interactive musicians and kids
played with maracas, tambourines, and percussion instruments and we sang Red by
Taylor Swift, Baby by Justin Bieber, God Bless My Underwear, and Baby
Shark. Afterwards I had smores with
several campers where I saw Matt who worked with Sean and I at the JCCC Autism
Spectrum Support Group and who I got caught up on my recent activity. Afterwards, a small camper, no more than ten
years old, came to me “Do you have autism?”
“Yes.” I said.
“What do you do about your
autism?”
“Well I’ve had help when I was
younger and it helps me live my life.”
“Do you still have autism?”
“Yes.” I said.
“What will happen when I grow
up?”
“Well, when I was younger I
found the right supports and that helped me navigate in my life.”
“Are you ever gonna get married?”
“I hope so.” I said.
He asked me these questions some
again, and I gave him the same answer. Then
told me that when he grew up he wanted to teach kids with severe autism, and as
Angela and I cleaned up the instruments and a counselor beckoned him to leave,
he said, “Nice to meet you.” Elizabeth
and I then dropped Angela off back at her house and then we got a bite to eat
at Shake and Steak where I insisted on paying for her meal to reimburse her for
her gas money, and after making my case several times, she accepted that. We got back and we saw Switched at Birth.
The next day we got breakfast
and then helped set up the tie-dye work station, where I helped one kid make a
tie-dye t-shirt, then dyed one for another kid who was allergic to dye, and
then helped the next two groups. Later
Elizabeth and I got together outside the LLC room before the panel and found a
young man sitting on one of the couches.
“Hi, I’m Nathan.” He said.
Elizabeth
and I introduced ourselves and then at 2:30 we went in and I anxiously readied
myself for the panel. Finally, the first
group, accompanied by Kelly and a young dark-haired neurotypical girl came
in. After being asked, “how do I define
autism,” I was asked, “What has been the biggest challenge in your life?”
I
said, “Even though I have the social skills to have successful interaction with
people, whenever I meet people, friends, romantic interests, I often wonder if
they will be mature enough to understand what I’ve been through, what I’ve had
to do, and how I’ve had to grow up at an early age because of my life with
autism.”
At
this Kelly was in tears and the young counselor teared up as well. As the next group came in, I told them about
how people in my life have not always been able to truly understand myself as
an autistic person or my struggle and I said, “One girl, who once* had a
romantic interest in me seemed to try and show she was just like me by saying
on Twitter how she loved getting movies on Netflix. I’m thinking ‘that’s not an autistic thing!’ You can’t even get your stereotypes right!”
Everyone
laughed.
The
next group came in and I told them, “Sometimes I would like a girl while not
knowing how she felt about me, and therapists would say, ‘you just don’t
understand non-verbal social cues,’ and that was a real oversimplification of
it. Several kids nodded in agreement and
said, “I know just what you mean,” and, “I’ve had the same thing happen to
me.” Afterwards one girl at the camp
said to me, “Thank you!”
The next group came in and I
told them how when I was in school, despite being segregated in a special
classroom, I felt that there was no help for me in school until my last days of
sixth grade. Afterwards, a woman
approached me, saying she was a special education teacher, and asked how I felt
there could have been more help for me.
I told her it would have been good if my school had better methods for
behavioral correction, more ways for me to be a part of my school, and had
helped me as I had bullies.
After
the last panel, the kid I had met last night came up to me and asked for my
contacts so I could talk to him outside of camp, and I gave him my home and
cell number and e-mail address.
Elizabeth and I went to dinner and a young kid greeted me from behind. When he was out of earshot, Elizabeth
whispered to me, “I think you’ve got a new admirer.”
As
Elizabeth and I were about to go to her Bible study, I said goodbye to Kelly
and she thanked me for coming, saying I was so inspiring to the kids and would
love for me to come back as a board member of the camp or a counselor to help
see that things were going right. I
thanked Erin for letting us use her apartment and said goodbye to her. I said goodbye to Cassidy and went up to the
young kid who I talked to the last night and said goodbye to him and wished him
luck on and gave him and vote of confidence for teaching children with severe
autism. Elizabeth and I then went to her
Bible study and I met several friends of hers including Joey, Lydia, and Bethany. We discussed a book called the story of
Bethany, and it was quite illuminating.
Joey eventually said, “People are saying that we can’t help the people
who are coming to this country because of limited resources and that it’s a
political issue. I think, no, it’s a
Jesus issue. I feel if Jesus was alive
today, he would have fed these people.
Afterwards
we walked down to a Mexican restaurant, during which I learned Joey was
graduating KU with a degree in Latin American studies, and later planned to work
in Mexico. At the restaurant, where I
ordered a beer and a churro, after I found out they were out of fried ice
cream, I told Joey about Lonely Planet, how it’s authors research hotels,
sights, and restaurants there, and how he might enjoy that if he’s going down
to Mexico, as many of its authors do that in junction with other work, such as
one author who did a chapter on Mauritania while down there to research the
accidental shooting of the president. He
liked that idea and as we were about to walk back to the church, he gave me his
phone to send me a friend request through his Facebook page. As we got to Elizabeth’s car, I suggested we
come there other nights and she thought that was a good idea. We got back to the apartment and watched more
Switched at Birth before falling
asleep. We stopped by the McDonald’s
drive-through and I paid for the two of us again to reimburse her for her gas
money. Afterwards I went to work and the
next day Jack, his dad and I went to Shakespeare in the Park, where I got a
Shakespeare Festival 2014 A Winter’s Tale
button for my donation. We sat in
lawn chairs, enjoying beers, wings, ribs, baguette, and cheese, and for three
tickets, one dollar per ticket, I enjoyed a fried Snicker’s bar, while we
watched A Winter’s Tale. Afterwards Jack’s dad asked me if I wanted to
see this bench in the park erected in honor of Jack’s mom and I told him
certainly. We saw it before he drove me
home and I got what little sleep I could before I would wake up for the airport
the next morning.
*Stay tuned. A
link will soon be available to a transcript of my interview on my other blog www.autistdharma.com.
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