The day after I got back from New Hampshire, I went to
Lake Lotawana with my brothers to see my grandparents, Uncle Todd, Aunt Laura,
and cousins Abby and Eric, where I sold my aunt the receipt coasters she hired
me to make and got paid fifty dollars for it. After a dinner of fries, brisket, and ribs, my granddad drove my
brothers, cousins, aunt and uncle, and I on a boat ride. Over the next few days, I enjoyed my Lonely
Planet Germany book, learning about many World War Two, East Soviet, and beer
halls, going to Starbuck’s, and reading Water
Touching Stone. The next Thursday I went to my art class
and on the next Friday I worked from 4-7, getting a new Sweet Leaf Tea cap from
my drink I bought with my dinner afterwards. Two days later I practiced my flute for half an hour, playing tunes from
my Hobbit flute solo book. Afterwards I
realized I probably ought to RSVP to the Autistic Self-Advocacy Network Kansas
City chapter July meeting on Facebook soon. I also remembered a promise I had made four months ago for after I sold
my receipt coasters to my aunt, I would donate a portion of it to the memorial
scholarship fund of a girl, and friend to the THRIVE program, Erin Hook, who
died in a car wreck along with another female friend, Jennifer Reeder, also a
supporter of the THRIVE program, as well as a portion of the money to the
Autistic Self-Advocacy Network. That
night I donated $10 to the Autistic Self-Advocacy Network and put in a section
saying, “in honor of,” “Erin Hook and Jennifer Reeder.” That night I put up a post about it on
Facebook, and later saw Barbara Mayfield commented saying, “I admire your
selflessness, Ben.” Beth Rutt, the
director of the Student Wellness and Recreation Center wrote, “Ben, you are a
great example for us to pay it forward.” Despite people’s comments, I felt restless that night, pacing nonstop as
I have many times throughout my life, mostly when younger. The couch no longer felt like a place I could
sit on, and I felt so much better on the outdoor swing, reading my Lonely
Planet Germany book while struggling to hold a flashlight to read it. But it was no go, and I continually paced
until I finally felt able to go to sleep. The next morning, I found out I got 17 likes on that post about my
donation, including from Abby, Dr. Downing, and my dad. I also practiced my flute for another half
hour. That next night I made my donation
to the Erin L. Hook Memorial Scholarship Fund, writing in the memo, “In honor
of a champion of the disability community who helped coordinate events for her
alma matter's THRIVE program for adults with intellectual and developmental
disabilities through the THRIVE formals of 2012 and 2013 and Zumba. May this
legacy be carried on throughout the life of our world and let its champion,
Erin L. Hook and her friend Jennifer Reeder, be recognized and rewarded in
memory for her work to make this possible.” But as I saw Hook’s smiling face, so, full of life, which it was no
longer. I made another Facebook post
that night where I posted my tribute. That night was another night of constant pacing like I had not
remembered for a while. I woke up the
next morning, I saw my status had gotten seventeen likes again and Mary, a girl
from the THRIVE program shared it, writing, “an example for us all." That night I went to Winstead’s, Barnes and
Noble with my granddad before going to the Pathless Land, and got back feeling
quite restless again, and quite some time to fall asleep. I awoke the next morning feeling my stomachache a bit and told my Mom I thought I ought to sleep in and didn’t feel able
to go to my art class. She understood,
and I slept until twelve, like I had so many times since coming home for the
summer, when I felt better physically then. I got through the day much better without the need to pace and clicked
“going” on the Autistic Self-Advocacy Network Kansas City chapter July
meeting’s page.
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