The day after I got back from New Hampshire, I went to
Lake Lotawana with my brothers to see my grandparents, Uncle Todd, Aunt Laura,
and cousins Abby and Eric, where I sold my aunt the receipt coasters she hired
me to make and got paid fifty dollars for it. After a dinner of fries, brisket, and ribs, my granddad drove my
brothers, cousins, aunt and uncle, and I on a boat ride. Over the next few days, I enjoyed my Lonely
Planet Germany book, learning about many World War Two, East Soviet, and beer
halls, going to Starbuck’s, and reading Water
Touching Stone. The next Thursday I went to my art class
and on the next Friday I worked from 4-7, getting a new Sweet Leaf Tea cap from
my drink I bought with my dinner afterwards. Two days later I practiced my flute for half an hour, playing tunes from
my Hobbit flute solo book. Afterwards I
realized I probably ought to RSVP to the Autistic Self-Advocacy Network Kansas
City chapter July meeting on Facebook soon. I also remembered a promise I had made four months ago for after I sold
my receipt coasters to my aunt, I would donate a portion of it to the memorial
scholarship fund of a girl, and friend to the THRIVE program, Erin Hook, who
died in a car wreck along with another female friend, Jennifer Reeder, also a
supporter of the THRIVE program, as well as a portion of the money to the
Autistic Self-Advocacy Network. That
night I donated $10 to the Autistic Self-Advocacy Network and put in a section
saying, “in honor of,” “Erin Hook and Jennifer Reeder.” That night I put up a post about it on
Facebook, and later saw Barbara Mayfield commented saying, “I admire your
selflessness, Ben.” Beth Rutt, the
director of the Student Wellness and Recreation Center wrote, “Ben, you are a
great example for us to pay it forward.” Despite people’s comments, I felt restless that night, pacing nonstop as
I have many times throughout my life, mostly when younger. The couch no longer felt like a place I could
sit on, and I felt so much better on the outdoor swing, reading my Lonely
Planet Germany book while struggling to hold a flashlight to read it. But it was no go, and I continually paced
until I finally felt able to go to sleep. The next morning, I found out I got 17 likes on that post about my
donation, including from Abby, Dr. Downing, and my dad. I also practiced my flute for another half
hour. That next night I made my donation
to the Erin L. Hook Memorial Scholarship Fund, writing in the memo, “In honor
of a champion of the disability community who helped coordinate events for her
alma matter's THRIVE program for adults with intellectual and developmental
disabilities through the THRIVE formals of 2012 and 2013 and Zumba. May this
legacy be carried on throughout the life of our world and let its champion,
Erin L. Hook and her friend Jennifer Reeder, be recognized and rewarded in
memory for her work to make this possible.” But as I saw Hook’s smiling face, so, full of life, which it was no
longer. I made another Facebook post
that night where I posted my tribute. That night was another night of constant pacing like I had not
remembered for a while. I woke up the
next morning, I saw my status had gotten seventeen likes again and Mary, a girl
from the THRIVE program shared it, writing, “an example for us all." That night I went to Winstead’s, Barnes and
Noble with my granddad before going to the Pathless Land, and got back feeling
quite restless again, and quite some time to fall asleep. I awoke the next morning feeling my stomachache a bit and told my Mom I thought I ought to sleep in and didn’t feel able
to go to my art class. She understood,
and I slept until twelve, like I had so many times since coming home for the
summer, when I felt better physically then. I got through the day much better without the need to pace and clicked
“going” on the Autistic Self-Advocacy Network Kansas City chapter July
meeting’s page.
Living away from home with Asperger syndrome, working to start an autistic student organization in small town Missouri with the everyday challenges of school work, friends, relationship prospects, campus involvement, and independent living, with only my friends, family, faith, passions, heart, mind, and community of like-minded individuals for support.
Autistic UCM

Landmark Writings
Thursday, July 31, 2014
A Retreat in New Hampshire
I woke up on the last Sunday of June with my brother Cam
taking me to the Kansas City airport and caught my plane to Baltimore, where I
read some of Water Touching Stone to
pass the time. At the Baltimore airport,
I got a Rolling Stone special issue on Michael Jackson (a man I’ve heard to be
autistic) and an Essence magazine special issue on Maya Angelou. I also enjoyed an Arby’s brisket sandwich for
lunch. I made it to New Hampshire where
I met my grandmom and my mom and we drove down to the cabin in Mirror Lake
where my mom and Dave, Uncle Andy and Aunt Marge, and I would stay. I met my mom’s cousin Rich there and got two
new bottle caps for my collection from the drinks we got there. Later Dave and I canoed across Mirror Lake to
the house where my grandmom, Uncle John and Aunt Nin were staying, where we
enjoyed some kebabs cooked in Cajun spices cooked by my Uncle John.
The
next day I went to Sandy Beach with my mom, Dave, Uncle Andy, Aunt Marge, Uncle
Kurt and Aunt Barb and their children Kyley and Hunter, who I played with on
the beach. When I got back, I found in my
Lonely Planet West Africa book a festival in the Gambia that commemorates the
countries slave heritage with music workshops, parades, and performances, a way
I felt was good for Buddhists like me (assuming they, or I, have the money) to
bear witness to people’s suffering. Later we all had salmon together while I got a new bottle cap from my
drink and from Uncle Kurt and Uncle Rich. Then we all went and got ice cream together while I realized I might
like to do a book of quotes from famous people with autism.
The
next day I climbed Mt. Washington four an exhausting four hours with Mom, Dave, Uncle Kurt, Uncle John, Aunt
Nini, Uncle Andy, Aunt Marge, and Uncle Rich. I saw two or three different kinds of birds, one of which I got a
picture of, and a unique frog, which I also got a picture of. At the top I bought some Wonka gobstoppers,
of mints. Then I saw a couple kiss and
thought it was a nice thing to see. After that I got a bracelet made from parachute cord. I also made some paper airplanes from hot dog
trays, which I realized I could give to Kyley and Hunter. On our way to dinner, I realized I may have
enough time in my life to take several trips to a lot of the different African
countries and spend a week or so absorbing some of the various places like
Ouagadougou, Dakar, the Adrar, and elsewhere. We ate dinner at a pizza place where I saw a girl hug a guy and
remembered what it felt like to be hugged by a girl like that, which I hadn’t
felt for a long time, and decided I would experience that joy once more. I was
also cut short from working on my travel plans to West Africa because of the
moths everywhere, during which I spilled my beer in the dark after turning off
all the lights planning to go to my room.
The
next morning, I started scooping up the bugs for the windowsills. Then I went with Mom and Dave to meet Uncle
Andy, Aunt Marge, Uncle Kurt, Aunt Barb, Kyley, Hunter, Uncle John, Aunt Nini,
Nannie, Uncle Rich, and Aunt Dixie down at Sandy Beach where I played with
Hunter and lounged in a tube with a beer from where I got a new bottle cap, and
we stayed there until it started to rain. When we got back, I scooped up all the dead bugs. Then I went with Nannie, Aunt Nini, and Aunt
Dixie to an antique shop. Afterwards we
ate steak at Uncle Kurt and Aunt Barb’s house where Aunt Nini gave me a new
bottle cap, I made two bracelets for Kyley, and played with Kyley and Hunter.
The
next morning read until I paddle- boated into the center of the lake, joined
halfway by Mom and met the rest of the family including Mom’s cousin Andy and
his son, Morgan. We all had dinner later
at the Wolfsboro Inn, before going out to ice cream. When I got back to the house I talked to
Tyler, who told me how he had gone on a date with an actress friend of his.
“Well, that’s good,” I said.
“But I want to find a girl who
shares my pain,” he said.
“Do
you mean has special needs?” I asked.
“Yes!” he said.
“Tyler,
that doesn’t matter too much. A girl
could be good for you regardless of whether or not she has special needs.”
But
I knew exactly how Tyler felt. We would find a girl who was a true supporter of disabled people like ourselves, who could understand
our struggles. Having the most beautiful
or popular girl could not possibly replace having a girl who supported me
through the struggle.
I
read some more of my Lonely Planet book when I heard my mom, sitting at her
computer say, “Ben, guess what?”
“What?”
“Your friend, Ian Sneid: he’s going to UCM next year!”
My
heart leapt.
“That’s
great!”
The
next day I went with my mom into town where I went to the Country Book Seller
and got Buddhist Boot Camp and Lonely Planet Guides to China and Germany (the
former because I accidentally tore a page in it). Then I got a chocolate and caramel covered
cookie in a candy store next to the bookstore. On our way back home, my mom said she thought it was a good idea for me
to do my autism books and told me that the Autism Asperger Publishing Company
is in the Kansas City area.
When
I got back, I read a lot more of Buddhist
Boot Camp. We went over to Aunt
Nini’s and Uncle John’s house where I read it some more, found another Snapple
cap, got a new bottle cap, and realized that even if we spent more on autistic
people by providing them services, the fact is statistically we commit less
crime so in ways, we will always spend less on autistic people. That night it rained so the Wolfsboro Fourth
of July parade was postponed until the next day.
The
next day my mom, Dave, Uncle Kurt, Aunt Barb, Kyley, and Hunter saw the fourth
of July parade before going to the airport and making our way home, with Kyley giving me a small friendship bracelet before we left. At the first airport I looked on my Facebook
on my phone and found out I had been invited to the Autistic Self-Advocacy Network
Kansas City chapter’s July meeting at the Plaza Library on the 21st, and
thought I ought to go. On the ride back,
in which Jamie drove us home, I talked to Tyler, who called earlier that
day. When I got home, I called Hen House
and found out I was scheduled for the next Friday from 4-7.
Tuesday, July 15, 2014
Questions and Answers
On the day after we got back from Colorado, I pulled some
weeds and the mowed the lawn. Then I
went to Starbuck’s and read (reread) where I left off in Water Touching Stone. I also
e-mailed Elizabeth to ask her if she could give me a ride to the Camp Encourage
panel in Lawrence. Dave’s brother-in-law
Kent came to see us who he was staying with while in town for his Skills USA,
and we all had dinner. I was also asked over
Facebook by Elise Johnson Chaplain from Horizon to answer some questions on
Buddhism for a class she’s teaching for her MSW, which was due on Friday, which
I gladly agreed to do. I also got a call
from Jack inviting me to see Shakespeare in the Park on Saturday, which I
agreed to do. In a week we would also be
going to New Hampshire to see my mom’s family, and I would get up on Friday to
catch a plane at 4:50.
The
next day I got an e-mail from Elizabeth saying she was rather swamped but
telling me that she could come pick me up on Wednesday morning and take me to
camp to volunteer with her at camp that day, then to stay at an apartment of a
friend of hers, where we would sleep on couches, go to camp and volunteer the
next morning before the panel, and afterwards go to her Bible study in Lawrence
before going back to the apartment, and going home the next morning. I of course agreed and e-mailed Mrs. Johnson
to tell her I would need the questions by today or tomorrow to do them in
time. The next morning I pulled several
acorn trees and later I went to Starbuck’s.
Later I answered the questions on Buddhism for Mrs. Chaplain and e-mailed them to her. I also talked to Tyler.
The
next morning Elizabeth picked me up and told me one of her favorite shows Switched at Birth took place in Mission
Hills. I went with Elizabeth to pick up
her friend Angela, who I met and found to be very nice, as Elizabeth said. We went to Camp Encourage, where I helped a
few kids from one group of campers make stress balls, and then another group with
making slime. Then I switched to helping
the next group of kids make stress balls and then slime. During that time I got to meet Kelly, who was
in charge of the camp as well as a young blonde counselor Cassidy. After the last group of kids had left,
Elizabeth, Angela, and I cleaned up the mess.
Afterwards we all ate dinner together and then we went to the LLC Room
where we sat in a circle, accompanied by two interactive musicians and kids
played with maracas, tambourines, and percussion instruments and we sang Red by
Taylor Swift, Baby by Justin Bieber, God Bless My Underwear, and Baby
Shark. Afterwards I had smores with
several campers where I saw Matt who worked with Sean and I at the JCCC Autism
Spectrum Support Group and who I got caught up on my recent activity. Afterwards, a small camper, no more than ten
years old, came to me “Do you have autism?”
“Yes.” I said.
“What do you do about your
autism?”
“Well I’ve had help when I was
younger and it helps me live my life.”
“Do you still have autism?”
“Yes.” I said.
“What will happen when I grow
up?”
“Well, when I was younger I
found the right supports and that helped me navigate in my life.”
“Are you ever gonna get married?”
“I hope so.” I said.
He asked me these questions some
again, and I gave him the same answer. Then
told me that when he grew up he wanted to teach kids with severe autism, and as
Angela and I cleaned up the instruments and a counselor beckoned him to leave,
he said, “Nice to meet you.” Elizabeth
and I then dropped Angela off back at her house and then we got a bite to eat
at Shake and Steak where I insisted on paying for her meal to reimburse her for
her gas money, and after making my case several times, she accepted that. We got back and we saw Switched at Birth.
The next day we got breakfast
and then helped set up the tie-dye work station, where I helped one kid make a
tie-dye t-shirt, then dyed one for another kid who was allergic to dye, and
then helped the next two groups. Later
Elizabeth and I got together outside the LLC room before the panel and found a
young man sitting on one of the couches.
“Hi, I’m Nathan.” He said.
Elizabeth
and I introduced ourselves and then at 2:30 we went in and I anxiously readied
myself for the panel. Finally, the first
group, accompanied by Kelly and a young dark-haired neurotypical girl came
in. After being asked, “how do I define
autism,” I was asked, “What has been the biggest challenge in your life?”
I
said, “Even though I have the social skills to have successful interaction with
people, whenever I meet people, friends, romantic interests, I often wonder if
they will be mature enough to understand what I’ve been through, what I’ve had
to do, and how I’ve had to grow up at an early age because of my life with
autism.”
At
this Kelly was in tears and the young counselor teared up as well. As the next group came in, I told them about
how people in my life have not always been able to truly understand myself as
an autistic person or my struggle and I said, “One girl, who once* had a
romantic interest in me seemed to try and show she was just like me by saying
on Twitter how she loved getting movies on Netflix. I’m thinking ‘that’s not an autistic thing!’ You can’t even get your stereotypes right!”
Everyone
laughed.
The
next group came in and I told them, “Sometimes I would like a girl while not
knowing how she felt about me, and therapists would say, ‘you just don’t
understand non-verbal social cues,’ and that was a real oversimplification of
it. Several kids nodded in agreement and
said, “I know just what you mean,” and, “I’ve had the same thing happen to
me.” Afterwards one girl at the camp
said to me, “Thank you!”
The next group came in and I
told them how when I was in school, despite being segregated in a special
classroom, I felt that there was no help for me in school until my last days of
sixth grade. Afterwards, a woman
approached me, saying she was a special education teacher, and asked how I felt
there could have been more help for me.
I told her it would have been good if my school had better methods for
behavioral correction, more ways for me to be a part of my school, and had
helped me as I had bullies.
After
the last panel, the kid I had met last night came up to me and asked for my
contacts so I could talk to him outside of camp, and I gave him my home and
cell number and e-mail address.
Elizabeth and I went to dinner and a young kid greeted me from behind. When he was out of earshot, Elizabeth
whispered to me, “I think you’ve got a new admirer.”
As
Elizabeth and I were about to go to her Bible study, I said goodbye to Kelly
and she thanked me for coming, saying I was so inspiring to the kids and would
love for me to come back as a board member of the camp or a counselor to help
see that things were going right. I
thanked Erin for letting us use her apartment and said goodbye to her. I said goodbye to Cassidy and went up to the
young kid who I talked to the last night and said goodbye to him and wished him
luck on and gave him and vote of confidence for teaching children with severe
autism. Elizabeth and I then went to her
Bible study and I met several friends of hers including Joey, Lydia, and Bethany. We discussed a book called the story of
Bethany, and it was quite illuminating.
Joey eventually said, “People are saying that we can’t help the people
who are coming to this country because of limited resources and that it’s a
political issue. I think, no, it’s a
Jesus issue. I feel if Jesus was alive
today, he would have fed these people.
Afterwards
we walked down to a Mexican restaurant, during which I learned Joey was
graduating KU with a degree in Latin American studies, and later planned to work
in Mexico. At the restaurant, where I
ordered a beer and a churro, after I found out they were out of fried ice
cream, I told Joey about Lonely Planet, how it’s authors research hotels,
sights, and restaurants there, and how he might enjoy that if he’s going down
to Mexico, as many of its authors do that in junction with other work, such as
one author who did a chapter on Mauritania while down there to research the
accidental shooting of the president. He
liked that idea and as we were about to walk back to the church, he gave me his
phone to send me a friend request through his Facebook page. As we got to Elizabeth’s car, I suggested we
come there other nights and she thought that was a good idea. We got back to the apartment and watched more
Switched at Birth before falling
asleep. We stopped by the McDonald’s
drive-through and I paid for the two of us again to reimburse her for her gas
money. Afterwards I went to work and the
next day Jack, his dad and I went to Shakespeare in the Park, where I got a
Shakespeare Festival 2014 A Winter’s Tale
button for my donation. We sat in
lawn chairs, enjoying beers, wings, ribs, baguette, and cheese, and for three
tickets, one dollar per ticket, I enjoyed a fried Snicker’s bar, while we
watched A Winter’s Tale. Afterwards Jack’s dad asked me if I wanted to
see this bench in the park erected in honor of Jack’s mom and I told him
certainly. We saw it before he drove me
home and I got what little sleep I could before I would wake up for the airport
the next morning.
*Stay tuned. A
link will soon be available to a transcript of my interview on my other blog www.autistdharma.com.
Autistic Pride Day in Leadville
On the morning before our trip to Colorado, I did not
sleep at all for some reason (that just happens sometimes I guess), but I
realized that if a chapter of the Autistic Self-Advocacy Network is opening up
in Kansas City, then it will be very close to the autistic social
network/mutual aid society I started at JCCC and a similar organization that a
friend of mine from high school started at Penn Valley, as well as Elizabeth’s
group at KU (I thought), so they may be able to work together for their own
mutual benefit. I also remembered how
Tyler said he thinks of me whenever he’s stressed as it makes him feel
better. We headed off to Colorado
afterwards, and while we drove, I worked on my travel plans to Turkey. I also got a new bottle cap for my collection
from a drink at the gas station. I also
drove a little bit on the highway with some caffeine, during which time my mom
taught me cruise control, and both she and Dave thought I drove really well.
Next Wednesday would be Autistic
Pride Day so I worked on a post for that holiday that was inspired by a post I
had seen on Facebook called Thoughts from
a Female Aspie. We went to Whole Food’s where I got
another bottle cap for my collection from a drink I got there. Finally we made it to our home, which looked
very different, and I could even see a stone patio and found several pebbles
for my collection. I saw that our
bathroom had been almost finished. I
also got another new bottle cap for my collection from our drinks here. Then Dave gave me new cell-phone
charger. After that I helped get my bed
made.
The next day Dave offered to pay
me to pull the weeds from our patio after I finished meditating. I also did fairly well with making eggs after
some good pieces of bacon that Dave made.
He always makes good bacon. Later
I went to the recycling center with my mom and Dave, where I found two new
bottle caps, one crown and one not, and then I helped them at the dump. My mom and I got coffee and I got a lemon bar
after that. Then we went to pay the
woman who remodeled our house, Sandra, and I went with my mom and Dave to help
give her a feeling of appreciation by seeing more of the family whose house she
helped remodel. Indeed her neighborhood
was very nice and clean, although the houses were by no means big. Dave and I went to the taco truck outside
Safe Way afterwards where I found several bottle caps lying around, including a
new one for my collection and several for my wall fish. I also got a new bottle cap from my drink
they got me at Safe Way. I drove back
home so my mom and Dave could show me the way into town, which turned out to be
a pretty easy drive. I also met
Elizabeth’s friend Kelly through e-mail inviting me to speak at the panel for
autistic adults to the kids at her camp, Camp Encourage, after hearing of me
from Elizabeth, and I accepted.
I
got back and worked on my mandala made from plastic bags and realized how the
words I make transcending sections of the mandala would give the piece a
feeling of unity, just like my Drawing I teacher said intersecting shadow lines
do in drawing, and how I will also have interesting and diverse pictures on
there from all the different bags. Then
I worked on pulling the weeds until it started to rain and I went back inside
and worked on my plastic bag mandala. I
also wrote in my bottle cap collecting journal.
I pulled more weeds until it was impossible to uproot any more of them
and Dave thanked me for doing that. Then
I read about all the ruins along the Lycian Way and realized there seems to be
all sorts of things right up my alley to do in all the different parts of
Turkey. I also realized that perhaps I
may have had an influence on the Kansas Legislature’s willingness to pass a
bill requiring some autism coverage with my testimony at the Kansas
Legislature, which Elizabeth also attended.
After a dinner of pork chops and apple sauce that had some pieces of
broken glass in It from the container breaking at Whole Foods, I worked on a
belt made from plarn for my granddad for Father’s Day, and during that time I
also realized that my blogging and other work may have prompted people to push
for things such as the anti-bullying legislation, and they may have also
prompted insurance companies to fear a broader autism coverage bill to be pass
and prompted them to push for their current bill.
The
next morning I cooked some bacon and eggs.
Later I took a walk around the train tracks and creek with my mom and
Dave, where I found several more pebbles, some molten rock, including some to
give to Jack and Tyler as gifts, and several bb shells, saw several beaver
dams, and enjoyed being around Wally. Afterwards
I read thirty-six pages of The Divine Madman, where I sort of realized that
Drukpa Kunley’s sexual exploits and promiscuity may have been a way to teach
the girls how illusory romantic satisfaction, and I worked on a Father’s Day
present for my granddad. I helped Mom
and Dave move some furniture after that.
Then I called Granddad, who agreed with how I might have influenced
several moves that have helped autism, and Dad to wish them a happy Father’s
Day. After a peanut butter and jelly
sandwich, where I did try and somewhat like zucchini, I finished and posted
both my Ben’s Blog posts for today.
After that I talked to Tyler for a bit.
The
next day I cooked some eggs, and then read some more of The Divine Madman,
which actually helped my better grasp the Tibetan language, which still has a
long way to go, and I got an appreciation for how Buddhism is good in all
trials as all trials are indeed impermanent.
I later went down to the National Forest and Turquoise Lake with my mom,
Dave, and the dogs where I took several photos and we picked up several
recyclables. I got back and finished a
belt made from plastic bags. Then I
worked on my wood drawing for my granddad, which I was so satisfied with I
would be sure to take a picture of to have a sort of copy for myself. On the way to dinner I did see that the
Autistic Self-Advocacy Network had successfully gotten the Autism CARES Act to
include changing the agency which looks at issues of adults with autism. I went to the Grill with my mom and Dave,
where I had some delicious steak and chicken tacos. We got back and watched Ron White’s A Little Unprofessional on
Netflix after that, in which he seemed to have gone downhill from when I had
seen him before.
The
next day Later I went into town with my mom and got some tacos at the taco
truck, which I learned you can ask for with just meat and they will remember
it, and I found a new bottle cap lying around as well as several ones that
would be good for my Rainbow Fish wall fish, and got a new one from my drink I
got there. My mom and I went into town
and I got a guitar-shaped mints tin, a hazelnut truffle, and a box of edible
flowers, which I didn’t realize what it was, but realized my mom might like it
and decided to give it to her as a Mother’s Day present. Then I got three more Native American post
cards to frame as wall art with my other post cards and they all have a theme
of warriorship. I gave Mom the gardening
kit and she loved it. Then I drove to
the liquor store, which we remembered on the way home and got some new beer,
and I realized my bottle cap collecting journal also functions well as a beverage
tasting journal. I drove back and when I
got home I got another new bottle cap for my collection. Afterwards I edited my Autistic Pride Day
post. Then I worked on my travel plans
to Turkey. After that I wrote in my
dream journal for today, yesterday, and the day before that. I had a great turkey sandwich with the sauce
from the taco truck.
The
next day Then I assembled the other bunk bed for our room. After that I worked on my travel plans to
Turkey. After that I went on a walk by
our tracks with my mom and Dave into an old abandoned mine field outside our
property and found several new pebbles, picked up some trash and recycling, saw
another bird species, and I realized what it must be like to explore Turkey
with all its hidden secrets and undiscovered ruins. I also found some bone in the park and
several clay pebbles on our property.
After that I worked on my Autistic Pride Day blog post, which I finished
and posted after a dinner of pizza, with some frustration of uploading my
pictures.
The
next day I got a new bottle cap from my drink at the café my mom and I ate and
much to her delight, she finished her bagel sandwich before me this time. Afterwards I helped her move a trundle bed
into our car and into our house. On the
way back to Minturn, we saw a deer carcass on the side of the road. I also decided I wanted to use my career to
help kick-start an Autistic Renaissance.
Then I got a buttered bagel and a Chai tea smoothie at a coffee shop in
Minturn, before buying a CD called Turkish
Groove (recommended by Lonely Planet) at Scarab. On the way back to our house we saw an eagle
and a coyote feasting on the deer carcass, which I realized must attract
wildlife. I got back to our house and Later
I read about Cultural Studies and decided I might like to do something with
that as well as filmmaking. After a
dinner of a turkey sandwich with sauce from the Mexican taco truck and brewing
some hot tea, Graham and Lane, his girlfriend, arrived and I got to meet Lane,
and it was nice to see them.
The
next day we got some tacos at the taco truck and found some more of my rainbow
fish wall fish before went white-water rafting.
After that we went to Tennessee Pass where I learned Lane’s sister is a
blogger with Asperger syndrome and I gave Lane the addresses to my blogs and my
e-mail address to send me a link to her sister’s blog.
The
next day we drove home and I got another new bottle cap from my drink along the
way I also got some tacos at the taco truck with my mom, Dave, Graham, and
Lane, and found some more of my rainbow fish wall fish. Then we went white-water rafting. After that we went to Tennessee Pass where I
learned Lane’s sister is a blogger with Asperger syndrome and I gave Lane the
addresses to my blogs and my e-mail address to send me a link to her sister’s blog.
The
next day we drove home and I got a new bottle cap again from a drink at the gas
station along with some spicy chips. I
also practiced some highway driving for about an hour and both my mom and Dave
said I did really well. When we got home
I found out I worked from 4-10 the next Friday.
Labels:
Autistic Pride Day,
Books,
Buddhism,
Cultural Studies,
Dad,
Dave,
Graham,
Granddad,
Mom,
movies,
repurposing,
Tyler,
Vacations
Monday, June 30, 2014
Freedom of the Open Road
On the first day after I got my driver’s license, I drove
to my art class, withstanding the torrents of rain that I had not yet
practiced, and to work, where I again got another USDA cap. I also talked to my granddad, telling him the
news of my driver’s test, of which he was really excited. The next day, with no more errands to run for
my mom not that I had my license, pulled a lot of acorn trees and weeds, spread
some mulch over my mom’s garden, put cushions on the outdoor seats, and moved some
bricks to the pile in near the back fence for Mom. Then I had an idea to turn Tyler’s bottle
caps into a sign saying “Jesus,” and I talked to Tyler, who loved the idea,
before I watched Regular Show. After
that I went into the Prairie Village shopping center where I got a new bottle
cap for my collection from my drink at Better Cheddar. Afterwards I mowed the lawn, and then I got
two more bottle caps from my drinks at Better Cheddar while I found out about
some great places to shop in my Lonely Planet Turkey book, including a shop
where unemployed women make handbags and jewelry from recycled material. In one week, we would go to our vacation home
in Leadville, Colorado.
The next day I had lunch with
Cam, Nora, and my dad, and I made a heart-shaped pin from the straws there. I got back and I went to Starbuck’s. Then I made another coaster from receipts. The next day I pulled some more acorn tree for
Mom. After that I went to the small Hen House
and got a People Magazine special issue on Michael Jackson, who was said to
have autism. Then I went to Starbuck’s before
I got back and worked on my Lord of the Rings card boxes. The next day I went to Starbuck’s and talked
to Tyler on my way back before driving down to work. When I got back, I talked to Tyler some
more. The next day I cleaned out my
minifridge where I found my last Smirnoff and took a shelf from the garage
down to the basement as well as my stuff for school to put on it, and I took my
school bookshelf downstairs and put all my plastic bottle caps there. Then I emptied the dishwasher before I went
down to Better Cheddar and got a new bottle cap from my drink. I went to Hen House and got a National
Geographic issue on famous women in history, and then I went to Starbuck’s. Later I drove down to Elsa’s Ethiopian
Restaurant, which I was very comfortable going to, and ate there with Mom
and Dave, who came there from their yoga class. On Wednesday I also got a Facebook message from Elizabeth saying she
was volunteering at a youth camp for people on the spectrum and served on a
panel of adults on the spectrum to help answer questions for the kids, and a
good friend of hers asked if she knew anyone who would be good for serving on
the panel and she told her about me and asked me if she could introduce me
through e-mail, which I said she could. I
did my usual drink at Better Cheddar, from which I got a new bottle cap, and
going to Starbuck’s. I got back and
later I went to Winstead’s with Granddad. Then we went to Barnes and Noble where I got the Lonely Planet guide to
Istanbul and a songwriter’s journal. After that we went to the Pathless Land where I meditated and realized I find
the same block with seeing old friends that I did with driving, which is trying
to get my mind off my “special interests” long enough. When that was over we went to Roasterie in Brookside. The next day I worked on my snack wrapper
collages before going to work and then getting back and packing up to get up
the next morning to go to our vacation home in Leadville, Colorado.
Preparing for My Driver's Test
The day after I had
gotten my grades for the last semester while mowing the lawn, I realized that as a person with Asperger syndrome, it may have been harder for me to learn to drive due to my tendency to retreat to my "special interests" during stressful especially from having suffered bullying and discrimination. The next day I got a call from work asking if I
could come in and work from 4-9, and I told them I would love to, so I drove to
and back from work where I got another USDA cap for my collection. Two days later I went to the bird store in Corinth
Square where Hen House is located, and helped her shop there, and also got a
new bottle cap from the drinks we bought there. The next day I went to my art class and enjoyed doing my painting there.
I drove to my art class and enjoyed doing my painting there as well as telling
the women there about my recent love life story. I drove to Einstein’s afterwards and home and
when I got home, I watched good videos on parking and parallel parking
that. I later looked at my Time magazine
bookazine on Thomas Edison and found out he proposed to his own wife in Morse
code, which struck me as interesting, as if he like one of the other autistics I have read about on Autism Myth Busters, seemed to prefer non-verbal communication over verbal communication, even if
with the woman he loved enough to be his own wife. I
drove to Einstein’s afterwards and home and when I got home, I watched good
videos on parking and parallel parking that. I later looked at my Time magazine bookazine on Thomas Edison and found
out he proposed to his own wife in Morse code, which struck me as interesting,
as if he like one of the other autistics I have read about on Autism Myth
Busters, seemed to prefer non-verbal communication over verbal communication,
even if with the woman he loved enough to be his own wife. I went down to Prairie Village where I read
about one of the first music therapy institutes still in existence and
functioning as a museum in Turkey at the height of its glory in the 16th
century. As I got back from Starbuck’s I
thought the gay rights, women’s rights, and Tibetan freedom posts I share also
have their merit to the autistic struggle as it was the struggle of woman and
ethnic and sexual minorities that has in fact inspired the disability rights
movement.
The
next day I called Hen House and learned I work on Sunday from 4-7 and Wednesday
from 4-8. Later I did a wood burning of
a silhouette of the Fellowship of the Ring with the quote “Not all who wander
are lost.” I had dinner and chocolate
cake dessert with Mom, Dave, and the Wendlands. The next morning, I realized Thomas Edison could have invented the light
bulb because he had special interests as a person with Asperger syndrome and
couldn’t sleep some nights and needed the light bulb to allow him to engage in
his interests after sunset. I went with Dad to meet my
grandparents at the King Tut exhibit. The next day I realized that special interests appear to be for people
with Asperger syndrome what stimming is for people with “Kanner” syndrome, not
that I believed these distinctions had any validity. Later I drove to Michael’s before work, during
which time I got better at parking, and I got frames for my Tibetan paper
tapestry and my THRIVE certificate. I
drove to Hen House and got better at parking along the way. There I saw my old middle school classmate
Marina Singleton, who is now working at Hen House. After work I got the schedule and found out
the only other time I work this week is on Wednesday from 4-8. I got a new USDA cap from my drink
afterwards, I realized that one thing that may have caused stress that
complicated driving while I was at JCCC for the first few years was being
surrounded by all these people after six years of only knowing a small,non-threatening environment like Horizon, and on my way home I realized I may
do well in an autism-related field seeing how Dr. Roy Richard Grinker was ableto lead a groundbreaking study of autism in Korea with training inanthropology, while I am making my way towards a degree in Cultural Studies,
that Einstein having Aspergers appears to corroborate with the fact that he
played the violin, his life-long passion, before his speeches, considering how
even for me public speaking is stressful, and I realized that some of the
things that may have caused Einstein particular stress in his life are fleeing
Nazi persecution, his divorce, giving up his first daughter for adoption, and
the misuse of his invention the atomic bomb, and from the time I was sixteen
until eighteen, the source of stress that could have complicated me driving may
have been being a self-hating autistic. I got back and starting turning part of a
discarded t-shirt into a coffee sleeve, while I talked to my dad, who mentioned
my Horizon Academy story being on their Facebook page in a link sent by my grandmom
from our family friend Mrs. North, and he was very complimentary about it, as
was my granddad. Seeing my determination
to be a translator, I realized that I like Einstein and other reputedly
autistic people have an undying resolve at pursuing my passion.
The next day I worked on my
toilet paper roll wall art some more. Then I found one of my post cards that Mom sent me that I plan to frame
as wall art and my ring that I had made at UCM. I also stitched together a coffee sleeve. Later I started on and got very far on a
snack wrapper collage of Michelangelo. The next day I pulled some weeds for my mom before watching her do her
bee-keeping, and then pulling weeds some more. Then we drove down to Rimann’s liquor near the Starbuck’s where we got
some boxes for my recyclables. I
realized I can get so caught up in doing these things that I forget about
things like learning to drive. I got
back and learned about several different types of Tibetan literature that have
yet to be translated into English such as collections of songs by revered lamas
and stories for conquering Tibet’s malevolent demons to allow the introduction
of Buddhism. After going to Starbuck’s
and eating dinner I posted an
Autist Dharma post on the recent Santa Barbara shootings. The next day I got a lot of my recyclables
sorted into boxes and on shelves, while working on my plastic bag
mandalas. Then I did some highway
driving, which my mom said was really good and where I really improved on my
lane-changing, before I went to work. I
got a new USDA cap on my break, and I got another bottle cap from the drinks Mom
got at Hen House and she gave me a new lanyard that extends and makes it less
awkward to unlock my door at school. Then I talked to my dad before going to Rimann’s and getting a new
bottle cap from my drinks. I got back
and found a page on Pinterest that has given me good ideas for simple
woodworking projects, and it gave me the idea to make my own self for a lot of
my books, some candles, perhaps for a candlelight dinner with a girl, which I
think would be really romantic, and some signs. Later I read about how “being patient” with “the 10th request in five
minutes from Tibetans to see your Lonely Planet book” “because it may be their
only chance to see the Dalai Lama or other parts of the country” “can open locked
doors (literally) to the monastery,” and I realized that may be my chance to
access some of these Tibetan texts that I might love to translate into
English. The next day I drove to my art
class, during which time my mom said she let her guard down with me driving and got there and finished my painting. I drove back taking Mom to the Wendland’s to return something Mrs.
Wendland left at our house. Then with my
mom’s encouragement I unpacked all my stuff from the garage and then started
building my new bookshelf for my Lonely Planet books. After that I talked to Tyler for an hour and
then went to Starbuck’s. The next day I
watched a show on beavers that Mom recorded and learned how they can help
fertilize landscapes, and make their homes and live their lives, and it was
pretty cute how this one beaver family “only objected to one visitor in their
hotel-like homes: the filmmakers with their cameras.” Later I got two new bottle caps from my
drinks at Better Cheddar and one from around the glass recycling before I
helped a guy who saw me and asked me to steer his car with a dead battery into
a certain position before technicians could come to revive it, and he seemed
pretty grateful, and I knew he would remember it like my granddad said people
remember about my help. I got back and
mowed the backyard which my mom started on and the backyard. Then I went to the Prairie Village art fair,
where I saw Jack and Dan from work, before I enjoyed my Lonely Planet book at
Starbuck’s. I got back and finished my
bookshelf, which looked great. Then I
called work and found out I work on Sunday from 3-8, Wednesday from 3-8, and
Thursday from 4-8.
On the first day of June while I
was driving to Hen House, my mom heard they only go around the area of the DMV
and the instructor was really nice from someone who recently got the driver’s
license, and Mom said she wouldn’t have me do this and go out and drive on my
own if she didn’t think I was ready. She
also confessed that when I first started learning that she doubted I would ever
learn to drive. I perfected my parking
before I got back and got a new bottle cap from the sodas we got at Hen
House. Later I drove down to get our
pizza order from a restaurant, where I saw Beer Garden next to where we parked. The next day my mom said we should go take my
test the next day. Then we drove to work
where I got a new USDA bottle cap again. I also drew a Thomas Jefferson portraiture. The next day however, my mom ended up
deciding it would be better to get my driver’s test the next day, so that day I
drove my mom to Shawnee Mission East high school’s glass recycling, then to
Target, and then to Brookside. Later I
spent the whole night fighting nerves. My dad told me he thought I could pass, and my granddad told me it
didn’t make a difference whether I passed or not. Then Mom, Dave, and I spent the night
watching The Italian Job.
The next day I had my usual café
expresso at Starbuck’s before driving down with my mom to the DVM. The wait turned out to be much shorter than I
expected, and finally a short blonde woman, the examiner, approached me,
beckoning me to take the test. She
appeared very friendly, and we had some casual conversation as I drove, and, to
my amazement, I drove at the right speed, obeyed all the traffic signals,
turned well, and didn’t even need to change lanes. Afterwards I parked in a lot perfectly and
the examiner said, “Alright, you passed.”
“R…really?” I asked, pinching
myself to make sure I wasn’t dreaming. I
went in and a license was printed off on a sheet of carbon paper until such time
as I got my permanent license. I drove
home with my mom one more time and made my old permit into a mirror hanging
with my name, picture, Kansas state capitol building, and the name of my state
and put my Buddha dashboard figuring in the front before I drove on my own to
work. My brother Cam got home that night
and congratulated me. I also called
Tyler and told him the news.
Sunday, June 15, 2014
The Beginning of Summer
On the first day back, I spent
some time pulling weeds in our garden and patio. As I emptied out my trash can, which I had
used to carry a lot of my stuff home, I found a new bottle cap for my
collection, which Sinho must have thrown away in there, as well as one from a
coffee soda at Better Cheddar (which tasted awful), and from my Deschutes beer
I bought at Crazy Dog’s, which didn’t care so much for the taste of either. I also found out Maria had accepted my friend
request, as of course I thought she would. I went down to Better Cheddar and got a new bottle cap from my drink I
got there. I also got an e-mail from
Horizon’s public relations coordinator asking for a ten-twelve sentence article
telling what I had done since leaving Horizon, what I missed most about or
benefited most from the school, and what I looked forward to doing this summer
and to see if I could get it to them by May 13. I told her I would be happy to and typed up
the article. Unfortunately, a virus on
my computer prevented me from sending it that day. I also talked to Tyler again.
On Sunday I went with Mom and
Dave to Café Provence for Mother’s Day. After that we drove up to Hen House where several of my fellow employees
were happy to see me and one of the managers said she would let Rick, the
assistant manager know I stopped by and that I was now able to work, and I
would be on the schedule by the twenty-fifth. On Monday I went on Amazon and ordered myself The Divine Madman as my reward for doing that one day’s reading for
my Early American Literature class, as well as a Lonely Planet Turkey book to help myself plan a trip to Catalhoyuk,
which I had learned about in my World Archaeology class, and perhaps to bear
witness to the Armenian genocide. The
next day I unfortunately had to retype my piece for Horizon, but I did it,
making it pretty much the same as I had before, and I e-mailed it to Mrs.
Campbell from Horizon. I also drove to
and back from Hen House with my mom and there I filled out a W2 form so I could
get back on the schedule. I also got a
new bottle cap from the drinks we got there. Later I went with my granddad to Winstead’s before going to Barnes and
Noble as we always do afterwards, where I got a new edition to Lonely Planet’s West Africa, and then
went to the Pathless Land for the first time in a while. On Thursday I went to my art class with Donna
for the first time this summer, driving there and back. I also went to BE Tech to look at a new
laptop. The next day my mom and I went
down there again and got my new computer. I did also go down to Better Cheddar and get two more bottle caps from
my drinks and my Lonely Planet Turkey book
in the mail, and the day after the next day I got The Divine Madman. The over
the next two days I also got two new bottle caps both days from my drinks at
Better Cheddar and on the latter of the two days I checked my grades and found
out I had gotten B’s in my Film Appreciation, Modern Sub-Saharan Africa, and
Early American Literature class, and an A in my World Archaeology class.
*Stay tuned for soon on this post I will provide a link
to my school alumni article on my other blog autistdharma.blogspot.com
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