Spring Break 2014

I saw an e-mail about how condolences for the loss can be sent to the address of the ASA president Ellen Whit, whose name I recognized from the Friend of Autism Pledge, and I decided to send her an e-mail after break saying I recognized her name in the e-mail from the pledge and wanted to wish my condolences to her. I put up a Facebook post that said, “Three types of girls I will never date:/-Girls who don’t wear their seatbelts, or ride with people who do/-Girls who smoke/-Girls who support autism organizations that pay more to their executives than supporting individuals and families/All three of those thing could cut my time short with her.” I saw Dr. Downing, Jamie, Kurt, Britney, and one other person liked it. I also wrote “Three of the worst things you can do while driving:/-drink/-text/-support charities that don’t pay most of their money to the causes they claim to represent/When you do any of these things your car can kill.” Brittany liked that. I shared a link to Hook’s obituary on Ryan, Philip’s, Hillary’s, and Mardy’s page and saw that they liked it, and Hillary liked my comment on her page about how I reacted to these girls deaths.  Brittany also liked several other things on my page. I shared a link about the vigil on THRIVE’s Facebook page, commenting on what the girls did for THRIVE and how I thought the link deserved to be on there, and Dr. Downing approved. I shared a Buddhist link with people at the Pathless Land, and several of them, including Steve, liked it, and Steve said, “Awesome Ben Edwards.” I realized I can reach out to and gain respect of people like that. I talked to Tyler who said he knew of the girl’s deaths and knew one of the girls. I realized there are times when college students lose their lies like this, like the fall semester before last, when a twenty-three year UCM male student died in a car wreck not wearing his seatbelt, from seeing it in the Muleskinner while working there.

The next morning I felt pretty good though a little frustrated as I had a nosebleed while I had just undressed to take a shower and Dad texted me to call him and I wanted to call Elizabeth to make plans for tomorrow, but I called Dad, and I called Elizabeth and she offered to pick me up and take me to Panera tomorrow, which I accepted as I was feeling still quite overwhelmed by the loss of the girls. When Elizabeth pulled up in my driveway however, we ended up going to Minsky’s in downtown Prairie Village instead of Panera. Elizabeth and I started getting caught up on each other’s lives and she told me there was an Autistic Self-Advocacy Network chapter opening up in Kansas City. I started telling her about the group and she was excited to hear that it was getting ready and understood that it was taking a while to get off the ground.

“The thing about the autism community is that we’ve always sought friendship.” She also told me, “I’m your friend in the autism community.”

Finally, I also told her about the loss of Hook and Reeder.

“I’m sorry,” she said, very sincerely.

“It’s just, sometimes I still feel some pain, but then it just subsides.”

“That’s called grief and it’s perfectly natural. It means something was important to you.” 

I smiled. Elizabeth was being very empathetic just as I had expected she would.

“These kind of things just seem to happen, and I guess, ultimately, there’s really no point in trying to figure out why.”

Elizabeth looked at me with such kind eyes. Eventually we got off the subject of Hook and Reeder, which was really a relief to me. She asked me about my bottle cap necklace and I told her about it and showed her my belt made from plastic bags. She looked amazed.

“It’s really strong,” I said.

“I believe you!"

I learned her brother had had cancer for the last year, although she did tell me not to make any negative assumption about it too quickly as she said he was getting better. She also gave me a business card for her work as a music therapist, which she had recently been licensed to do after finishing her practicum for it last year. As I got out of her car and said goodbye, I realized I truly did have one friend in the autism community.

Later that day I went with my dad to our family house at Lake Lotawana where I indeed also found twenty-three new pebbles near our garden. Then we went to have a beer at the Canoe Club while we waited for my grandparents to come and eat with us. In the meantime, he asked what I planned to do after college. I mentioned selling some environmental crafts on Etsy, being a drama teacher at Horizon, and maybe publishing a book on my experiences at UCM and other parts of my life, before, hopefully, getting a career in filmmaking. He thought those were all good ideas. Then he asked me, “Ben, have you ever thought of having a career as an autism specialist? It’s just that none of the autism specialists I’ve ever known of have had autism.”

I said, “I don’t know, I mean I thought either way I would do some stuff involving autism.” 

Soon my grandparents arrived. My granddad started telling us about how Bob from the Pathless Land was told by his doctor that he absolutely needed to quit smoking. He had “had his last smoke” with my granddad, though there had been slips since then. I had hoped he would quit as he was a great man who I had known for the last two years at the Pathless Land. 

The next day I drove to my appointment with Dr. Mays, then to the post office, and then home getting twenty-five more minutes of driving. I made twelve more flowers, seven more heart-shaped pins, a rose, and then seventeen more heart-shaped pins from straws, and decided to use the heart-shaped pins in making prints. I went to Better Cheddar and got two new bottle caps for my collection and drank the drinks while I ate a Mars Bar and read Mckinsey’s blog post on world hunger statistics, which I commented on favorably. I went to the hardware store and got a saw to cut my board at school apart and some wood to cut into rectangles for wood burning. I then cut apart the board and turned that coaster project Mom started into two coasters, which she was pretty impressed by. I also got the idea for when I find “a one” to glue the letters of my old computers to two of those boards and give each of us one of them on our anniversary where we can write a word or phrase next to each other about how we feel about each other. I drove to Bella Napoli, getting ten more minutes of driving. There I also got a new bottle cap from my beer. I also realized how interesting it is that I drink two sodas and eat a Mars Bar while reading a post on world hunger statistics. 

The next day I called Jack and left a message to see if he could sleep over with Tyler and I this spring break. Afterwards I grinded up leaves and spread them in my mom’s garden for fifteen dollars an hour for three hours. I also felt comforted knowing Elizabeth could understand how I felt about those girls. I made one of my coasters for Aunt Laura from receipts. I went down to Better Cheddar and got two new bottle caps for my collection from my drinks. On my way back I picked up and sorted some recyclables. On my way back I found a good walking stick to carve. I also worked on my coasters made from paper plates and Styrofoam.

I was able to slow down and take a breath while I enjoyed some Welsh rarebit for dinner tonight. I then talked to Jack who said he couldn’t sleep over this spring break because he has a lot going on, but he did say he could do it over the summer. I also told him about the girls, which he was shocked about, but glad I told him about, and about how Emily and I broke up. I talked to Dad and he and I agreed to eat dinner together tomorrow night and I sent him the links to my blogs. I wrote another post Autism and Olympics: Not So Special After All and posted it. I also saw another one of my Facebook friends accepted my invitations to like Tania Marshall and Little People of America. I remembered how great it feels to wake up and get a text asking saying, “I love you.”

The next day I realized more of how I would organize my stamp collection before I went to BRGR with Dad and he gave me dozens of bottle caps, which I found five new ones in, two Buddhist magazines, which I already had but could make some DIY colleges with, and a craft board. The next day I drove to get my blood tested and got ten minutes of driving on the way, then to a garden shop, then Dunkin Donuts, where I had a jelly donut, then Bruce Smith, and then the hardware store, getting another twenty minutes of driving. Afterwards I got two new bottle caps from my drinks at Better Cheddar. I also got some bread and turkey at Hen House along with the current issue of National Geographic. I arranged to get together with Erin tomorrow at eleven, and then I wrote in my dream journal. I also made another rose from straws. Tyler got here and I gave him those bottle caps I’d saved for him. We ate burgers and fries and then watched Epic. 

The next day Tyler met Erin before she and I went to the Cheesecake Factory and I gave her presents and she gave me mine: a book called Empires of the Silk Road: A History of Central Eurasia from the Bronze Age to the Present. I got home and then went to my dentist appointment. I got back and rested from the cavity filling. I also agreed to go with Mom and her family to New Hampshire over the fourth of July, as I don’t see her family very often. I swung in our backyard while I read a lot of Erin’s book. Later I got Tyler to resend the link to the Down Syndrome Dance form when I couldn’t get to the page via the link I was sent. 

The next morning, I worked on my revised research paper for my Early American Literature class. I moved some soil, mulch, and compost into Mom’s new garden bed, during which time I realized that Beorn attacking the dwarves as a bear in the second Hobbit movie was a good idea as that way the audience gets the see Beorn as a bear before the third movie comes out, and Beorn being at Dol Guldur doesn’t seem like such a bad idea as Beorn was close to Radagast, who was a member of the White Council, and lived near there. Later I saw some good miksang photos and got inspired to take some more, which I did. I saw that the Autism Women’s Network liked my review of them before I took another photo. I also got together some bottle caps for my rainbow fish wall fish.