Showing posts with label Autism films. Show all posts
Showing posts with label Autism films. Show all posts

Sunday, August 25, 2013

The United States of Autism Movie


On Monday I drove to and back from art class, which was cancelled, getting thirty more minutes of driving. Then I talked to Tyler and comforted him, telling him what I thought yesterday. I called Emily, though I didn’t hear back, then I tried to call my granddad to tell him about Tyler and Mary, but he wasn’t there. My grandmom answered, and I told her about Tyler and Mary and what I thought was going on and she thought that could be the case. My mom asked me if I wanted go with her to see a movie at Town Center called The United States of Autism. I said sure and remembered that I had heard of that movie one time years ago from the Autism Women’s Network. Later I drove to my doctor’s appointment getting thirty-five more minutes of driving. After I got back, I realized my flowers would look nicer if the taller ones were closer together. 
Later my mom, Dave, Jamie, and I went to see The United States of Autism. There I saw an autism camp, which I donated a dollar to, and an old high school friend and fellow autistic named Ian Sneid. The camp told us about their mission and then the movie started. The filmmaker went across the country talking to families and individuals about trying to get the right resources they needed. Interviewees came from several different states in forty places across the country and included Sharon daVanport, co-founder of the Autism Women’s Network, Alex Plank, the founder of the Wrong Planet website, and Raun Kaufman, a man who claims that his parents' homegrown autism therapies cured him of his autism allowing him to go to a prestigious university. An Oklahoman father talked about his attempts to get a piece of autism legislation passed, which he claimed was very fiscally conservative, yet had been shot down by Oklahoman politicians regardless of their political party. He asked the question, “How can one be pro-life and not want to provide for autism. It’s as if they think they’ll only care for someone until they come out of the womb.” A mother talked about how unreliable the services providers are at ABA organizations and told one of their representatives on a high up floor, “If you don’t get me your director, I will throw myself out this window.” He later got the director to come speak to her. One mother said she hears stories of so-called “recoveries” and feels guilty wondering why she can’t do the same for her kid. Mom watched Alex Plank speak about neurodiversity and found him to be very impressive. After the movie ended, people from the camp spoke some more and my mom and Dave were begging Jamie and I to let us all leave and reluctantly, Jamie and I agreed.
After the movie we ate dinner at Blue Koi. Then I got home and talked to Granddad about Tyler and Mary, and he thought what I thought. He also thought that Emily might not be returning my calls due to something related to her ADHD. The next morning, I dreamt Emily, another THRIVE student I didn’t know, and myself were all walking together in the town of Warrensburg. After I woke up, I emptied and reloaded the dishwasher, took some pictures of some dying flowers, representing death, and some Russian dolls behind the glass in one of our cabinets. I drove to work adding another ten minutes of driving to my time adding ten more minutes of driving to my time. I realized that Raun Kaufman couldn’t possibly be autistic because I had seen the back of his book Son-Rise say that before he was cured, he was an empty shell, yet if he really were autistic, he’d know autistic people aren’t that way at all. I thought him saying the Son-Rise Program cured his autism is no more valid than Tom Cruise saying Scientology cured his dyslexia. I realized though while he gives “hope” for a cure, I give people hope that they can amount to great things with their present neurological differences. I also thought of an idea to show so: a talent night, much like the Culture Night last year at UCM.
After work I got the newest edition of Saveur magazine. Then the next day I went to work again and got a picture of my M&Ms during my break. On my way back I took some more pictures of flowers, trees, and weeds that looked like ikebana arrangements. When I got back, I found out my mom had cleaned out my closet. I unpacked a little bit in effort to help clean out my room for my Uncle Kurt Aunt Barb, and cousins Kyley and Hunter who were coming to visit. I put some sticks I found into an old tea can like an ikebana arrangement and I glued some origami hearts made from receipts together.
Later I went to Winstead’s with my granddad where I felt it was kind of scary the violence that goes on towards autistic people in this country when I realized that like a tool, I have a specific purpose, and until I find that purpose, I might just be staying on a shelf. I went to Barnes and Noble with him where I got a July/August 2013 issue of Poets and Writers and the September 2013 issue of Bicycling magazine. Then we went to the Pathless Land where I meditated with the others just sitting, breathing, and being. Then I realized that the mother who threatened to throw herself out the window like so many other parents would be right behind me in my cause to give autistics full access to society. I realized and told the group that while I could feel scared about the way people with autism are often treated in this country, I felt comforted by the love of Emily and realized I would rather have a long-distance relationship now than a short-distance one later. Ben said that trying to change our past would be like the movie Back to the Future, where it creates a ripple effect that changes our entire lives. I did the closing for the Pathless Land then my granddad and I went to Roasterie Coffee. I got back and I rearranged my room and realized that might be right in thinking I’d like to do Chinese painting because it’s often of the stuff I take pictures of.

A Fourth of July with Family

On the first day of July my mom told me as I came down after waking up that she was worried about my coughing and sneezing. I went to the bank and deposited my last paycheck and then I bought copy of Life magazine’s Wonders of the World: 50 Man-made and Natural Marvels and National Geographic’s The Civil War: The Conflict that Changed America. After that I got a call from my mom saying she wanted to take me to Village Pediatrics to do something about my cold and I drove there and went to an appointment. On the way back we went by Corinth Hen House, and I got Life magazine’s Remembering Katharine Hepburn and BBC’s The American Civil War: The Causes, Key Events, and Legacy of this Landmark Conflict as Told by the World’s Leading Experts. When I got back took a pill for my cold and I disassembled the legs of my table for UCM Autism Spectrum Support Group cable holders and replaced them with the straighter legs made from paper towel rolls and worked on a bowl made from coiled receipts. I also thought I’ll know when I meet a girl I’m in love with after I get to know her first. 
                I felt much better, and I worked on my travel plans to Mongolia. I rode my bike for about half an hour and I took some pictures of things I saw on my ride, including a dead squirrel as it can teach us about our own mortality. On Wednesday I remembered how when I was at the Kansas Legislature representing people with autism how my friend and colleague Elizabeth Boresow said her trouble receiving the right services had to do with government bureaucracy as I had always believed. I went to work the next day and after it was over I got the current issue of Native magazine. Then I went to my family house in Lake Lotawana with Jamie, Cam, and Nora for the first time this summer and I met up with my dad, Uncle Todd, Aunt Laura, and my cousins, Abby and Eric. 
                I got several pictures of the neighbor’s cat and the knick-knacks around our house then we went to eat at the Canoe Club that night before Jamie, Cam, and I went back to my mom’s. The next day I went to the lake with Jamie, Cam, and Nora, and met my dad, grandparents, aunt, uncle, and cousins. We went on a boat ride and when I got back, I called my friend Erin and wished her a happy Fourth of July though our phone got disconnected. I also texted Maddie, Jack, Elizabeth, and Tyler to wish them a happy Fourth of July. I got some pictures of the fireworks and played catch with my nephew Eli before we had our traditional hot dogs and burgers followed by Fourth of July cake with white icing, blueberries, and strawberries and then we watched the fireworks show.
                When we got back to my mom’s I watched an episode of Good Luck, Charlie and was able to see more of how the plot developed which I took to mean I’m becoming more of a screenwriter. I also worked on my bowl made from coiled receipts. The next day I emptied my laundry basket before I worked on my travel plans to Nepal. I took pictures of some knick-knacks around our house, and I went to the lake with Jamie, Cam, and Nora. I went on a boat ride with my dad, Jamie, Cam, Nora, Abby, and Eric and took several pictures of Lake Lotawana during it. Jamie, Cam, Nora, and I got back and called Erin and apologized for the phone disconnection though she said it was alright, and I worked on my bowl made from coiled receipts.
                The next day I went to Peanut with Jamie and my dad while Cam had to work and when I got back to my dad’s I saw a publication on my bed. Then I went to work, and I got the schedule and found out I work the next day from 10-6:30, Wednesday from 7-3:30, and Saturday from 1:30-10. When I got back, I called Tyler and told him I hoped he had a happy Fourth of July and found out he was doing good. I also found out the publication on my bed was Tulane, my dad’s alma matter, with a cover story called Passage of the Heart about how the Social Work school of Tulane was partnering with the Louisiana Himalaya Association to help the Tibetan refugee communities of India so the students could gain professional experience. A passage at the beginning of the article said, “It’s been said learning is a journey; and like a true journey, if you knew the end before you got there, it would not be a real journey would it.” I went to work the next day and I realized my group should help encourage autistic people to disclose their disability to their employer thus affecting their chances of job retention/promotion and raising tax revenue and continuing to strangle any government excuse for not providing autistic people with services they need and that as a magazine collector I could probably find UCM magazines that they give out for free with things I find interesting like Buddhist-related events. After work I drove home adding ten more minutes to my driving time and I worked on my travel plans to Tibet and my bowl made from coiled receipts.